In an interview with TV2Fyn, Camilla Kristiansen shares her journey dealing with Polycystic Ovary Syndrome (PCOS) and its impact on her fertility, with insights from Professor Pernille Ravn, site coordinator of Spiomet4health Denmark at OUH
Camilla Kristiansen, aged 32, recently shared her journey dealing with Polycystic Ovary Syndrome (PCOS) and its impact on her fertility in an interview with TV2Fyn, a regional television station in Denmark. PCOS affects between 5% and 10% of women of childbearing age, often leading to fertility issues. Kristiansen’s story sheds light on the challenges faced by many women dealing with this hormonal disorder.
In the interview, Camilla shared, “I think from the age of 19 until I was 25, I cried maybe once a week because I was so frustrated. I knew I wanted a child.” Her story resonated with many, showing how tough dealing with PCOS can be emotionally.
For many women, PCOS becomes apparent in their 20s and 30s, especially when they have trouble getting pregnant and go to the doctor for help. It is common for women to encounter challenges in receiving a timely diagnosis or receiving one later, which significantly impacts their lives as they deal with symptoms they may not recognize.
Towards a new treatment for PCOS
The discussion not only delved into Camilla’s personal journey but also featured insights from Professor Pernille Ravn, shedding light on PCOS. She is the coordinator of the Danish site of the Spiomet4health clinical trial at Odense University Hospital (OUH), which is testing a potential treatment for PCOS.
Despite being the most common hormonal disorder among women of childbearing age, PCOS lacks specific treatment options. Symptomatic relief primarily involves birth control pills, hormonal contraception, metformin, and weight loss medications. However, Professor Ravn introduced the Spiomet4health project as source of optimism. She explained the project’s objective of intervening earlier in PCOS treatment, potentially addressing PCOS before symptoms manifest.
For many women like Camilla, the prospect of a tailored PCOS treatment represents a source of hope. As she reflected in the interview: “It would have been a completely different world for me as a 19-year-old if they had said, ‘Yes, you have PCOS, but you don’t have to worry because there is a treatment that makes it easier going forward’.”
The Spiomet4health clinical trial is ongoing, with the recruitment process still open. To learn more about this study, find all the details here.
Full interview with Camilla Kristiansen and Prof. Pernille Ravn on TV2Fyn
The daily life of a young woman with PCOS
In the article, Paula shares how her daily life was affected by PCOS since being diagnosed in the second year of high school. Severe menstrual pain, irregular cycles (up to 6 months), mood swings, fluctuations in weight, and, above all, a significant lack of energy that made her “drag herself through the day” were among the challenges she faced.
Contraceptive pills had no effect. “I didn’t know what to do, and neither did my gynecologist,” she says. That’s why, when she learned about Spiomet4health, she didn’t hesitate to give the first treatment specifically focused on addressing Polycystic Ovary Syndrome a chance. “I thought: if it works, great, but if it’s not suitable for me, at least I will have participated to help women who may suffer from the syndrome in the future.” The vote of confidence paid off: Paula clearly notices the improvement in her physical and mental health.
Access the full article by El Periódico
Being part of the clinical trial
The experimental treatment of Spiomet4health consists of one tablet per day. The medication combines three drugs concentrated in a single pill and focuses on the primary cause of PCOS: excess “ectopic” fat, located in areas of the body where it shouldn’t be. The goal of the treatment is to redistribute this fat and then solve all the related problems, such as excessive body hair or acne.
In addition, patients have regular visits every 3 months to the Hospital Sant Joan de Déu, where the progress of each participant is monitored. For Paula, the human and close contact with professionals throughout this process has been what defined her experience as part of the clinical trial. “No one had looked at me so closely in my life,” she notes.
In Spain, the Spiomet4health project is being carried out at the Sant Joan de Déu hospitals in Barcelona and Doctor Josep Trueta in Girona. However, the project, funded by the European Commission, also involves researchers from Denmark, Italy, Norway, and Turkey. Since its launch in 2021, they all share a clear objective: to find the first specific treatment for PCOS.
This trial is still progressing, and the recruitment process remains open. If you want more information about this study, you can find all the details here. And if you want to be part of Spiomet4health, enroll here!